Resource Library
Searching out information can be overwhelming. So, to make things easier, we’ve made the connections—and the selection—for you: from government health sites, to directories of dermatologists, to medical journals, to other people’s psoriasis stories. Browse through the lists below to find resources you can use to take control of your psoriasis. The resources listed below are for the reader's information only. Amgen and Wyeth do not endorse and are not responsible for the content included in these resources.
National Organizations
The American Academy of Dermatology (AAD)
http://www.aad.org
The largest, most influential, and most representative of all dermatological associations. With a membership of over 13,700, it represents virtually all practicing dermatologists in the United States.
930 E. Woodfield Rd.
Schaumburg, IL 60173-4927
P.O. Box 4014, Schaumburg, IL 60168-4014
847-330-0230
Fax: 847-330-0050
American Autoimmune Related Diseases Association, Inc. (AARDA)
http://www.aarda.org
This not-for-profit voluntary health agency supports research to find a cure for autoimmune diseases and provides services to affected individuals. AARDA produces educational and support materials, including fact sheets, brochures, pamphlets, and a newsletter titled In Focus.
American Skin Association (ASA)
A network of laypeople dedicated to achieving more effective prevention, treatment, and cure of skin disorders.
346 Park Avenue South, 4th Floor.
New York, NY 10010
212-889-4858
800-499-SKIN
212-889-4959 (fax)
www.americanskin.org
National Health Information Center
http://www.health.gov/NHIC
A division of the U.S. Department of Health and Human Services. Offers a free referral service to help people find organizations that provide information about psoriasis.
P.O. Box 1133
Washington, DC 20013-1133
800-336-4797 (toll-free)
301-565-4167
Fax: 301-984-4256
National Institute of Arthritis and Musculoskeletal and Skin Diseases
http://www.niams.nih.gov
A division of the National Institutes of Health, which supports research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
Fax: 301-718-6366
NIAMS Fast Facts
Health information that is available by fax 24 hours a day.
301-881-2731 from a fax machine telephone.
The National Psoriasis Foundation
http://www.psoriasis.org
The world's largest nonprofit organization dedicated to educating, serving, and empowering people with psoriasis and psoriatic arthritis.
6600 SW 92nd Ave., Suite 300
Portland, OR 97223-7195
503-244-7404 or 800-723-9166 (toll-free)
Fax: 503-245-0626
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U.S. National Library of Medicine (NLM)
The Library collects, organizes, and makes available biomedical science information to investigators, educators, and practitioners. The NLM maintains the searchable electronic databases listed in the section below.
U.S. National Library of Medicine
http://www.nih.gov
8600 Rockville Pike
Bethesda, MD 20894
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Searchable NLM Electronic Databases
MEDLINE
Medline® (Medical Literature, Analysis, and Retrieval System Online) is the U.S. NLM’s foremost bibliographic database. It references articles in 4,600 journals in life sciences with the emphasis on biomedicine.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
http://gateway.nlm.nih.gov/gw/Cmd
MEDLINE/PubMed
http://www.ncbi.nlm.nih.gov/pubmed
Provides access to over 12 million MEDLINE citations back to the mid-1960s and additional life science journals. Includes links to many sites providing full-text articles and other related resources.
MEDLINEplus
http://www.nlm.nih.gov/medlineplus
Extensive information from the National Institutes of Health and other trusted sources on over 600 diseases and conditions. There are also lists of hospitals and physicians, a medical encyclopedia and a medical dictionary, health information in Spanish, extensive information on prescription and nonprescription drugs, health information from the media, and links to thousands of clinical trials. This site is updated daily.
DIRLINE
http://dirline.nlm.nih.gov
Database of organizations related to psoriasis.
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Find a Dermatologist
If you are insured, check your health maintenance organization (HMO) plan. You may need to see your primary care physician first for referral to a dermatologist. If you have a choice of health insurance plans, choose one that gives you direct access to a dermatologist.
Administrators In Medicine (AIM)
http://www.docboard.org/
National Organization of State Medical and Osteopathic Board Executive Directors provides information on doctors in some states.
The American Academy of Dermatology (AAD)
http://www.aad.org/findaderm_intro.html
Represents virtually all practicing dermatologists in the United States and Canada. Detailed biographical information about AAD member dermatologists, including their education, specialized training, office hours, health care participation, and more.
American Medical Association (AMA)
http://www.ama-assn.org
Provides basic professional information on virtually every licensed physician in the United States, including more than 690,000 doctors.
515 N. State Street
Chicago, IL 60610
312-464-5000
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Food and Nutrition
Food and Nutrition Information Center
http://www.nal.usda.gov/fnic
General dietary, nutrition, and food-related information.
Agricultural Research Service, USDA
National Agricultural Library, Room 105
10301 Baltimore Avenue
Beltsville, MD 20705-2351
301-504-5719
Fax: 301-504-6409
U.S. Department of Agriculture
http://www.nutrition.gov
Information on dietary guidelines and dietary supplements, healthy eating, and healthy lifestyle choices.
Department of Agriculture
14th St. and Independence Ave., SW
Washington, DC 20250
202-720-8732
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News, Medical, and Information Web Sites
Search engines
About.com
http://search.about.com/fullsearch.htm?terms=psoriasis
More than 160 sites within its own network and more links to the Web.
America Online
http://search.aol.com/aolcom/browse?id=7233&source=subcats
A variety of government, medical, and online support groups and forums.
Google
http://directory.google.com/Top/Health/Conditions_and_Diseases/
Skin_Disorders/Psoriasis/
More than 30 links to organizations, news groups, and chat rooms.
Yahoo
http://dir.yahoo.com/Health/Diseases_and_Conditions
More than 30 sites from professional organizations to webcasts and alternative-medicine sites.
Web sites
Consumer information
http://www.healthfinder.gov
Links to carefully selected information and Web sites from more than 1,800 health-related organizations, including information on doctors, prescriptions, hospitals, long-term care, health insurance, and medical privacy.
Family Village
http://www.familyvillage.wisc.edu/lib_psor.htm
Organizations, chat rooms, and links to other Web sites.
Healthfinder™
http://www.healthfinder.gov
Links to hundreds of other sites that contain health care information.
HealthTalk
http://healthtalk.com/psoriasis
In partnership with the National Psoriasis Foundation, HealthTalk Interactive connects patients with experts who can answer their questions via interactive Web broadcasts—webcasts—then archives the programs and transcripts on its Web site. It offers emotional support and builds a sense of community. HealthTalk informs patients and family members about psoriasis issues in a dynamic way that provides credible medical information and puts a wealth of health information in perspective.
InteliHealth
http://www.intelihealth.com
The Johns Hopkins University health information center.
Mayo Clinic
http://www.mayohealth.org
Mayo Clinic Health Oasis.
Med Help International
http://www.medhelp.org/HealthTopics/Psoriasis.html
Dermatology Forum provides answers to medical questions.
MEDLINEplus
http://www.nlm.nih.gov/medlineplus
Extensive information from the National Institutes of Health and other trusted sources on more than 600 diseases and conditions. Updated daily.
Medscape from WebMD
http://www.medscape.com
Resource Center IBD; Medscape offers specialists, primary care physicians, and other health professionals integrated medical information and education tools.
National Health Information Clearinghouse (NHIC)
http://www.health.gov/NHIC
Offers free referral service to help people find organizations that provide information about psoriasis.
P.O. Box 1133
Washington, DC 20013
800-336-4797
Open Directory Project
http://dmoz.org/Health/Conditions_and_Diseases
International site with news and self-help.
U.S. Department of Health and Human Services
http://www.os.dhhs.gov
More than 1,000 relevant links to psoriasis resources.
200 Independence Avenue SW
Washington, DC 20201
877-696-6775 or 202-619-0257
WebMD® Health
http://webmd.com
Information on psoriasis, its symptoms, and treatments.
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Medical Journals/Publications
Information by and for doctors—may be challenging for nonmedical professionals to understand or access. In some cases, the publisher may require that you subscribe to access full articles.
American Journal of Clinical Dermatology
http://www.adis.com
Independent review articles covering important issues in the management of dermatological conditions, and original research focusing on the clinical applications of pharmaceutical, cosmeceutical, or laser treatments.
Adis International Ltd
41 Centorian Drive
Private Bag 65901
Mairangi Bay
Auckland 10, New Zealand
The Journal of the American Medical Association (JAMA)
http://jama.ama-assn.org
Publishes original, important, well-documented, peer-reviewed clinical and laboratory articles on a diverse range of medical topics.
Journal of Dermatological Treatment
http://www.tandf.co.uk/journals
Publishes articles for the medical professional dealing with all aspects of the treatment of skin disorders, including psoriasis.
Taylor & Francis Inc. including Routledge Inc.
29 West 35th Street
New York, NY 10001
212-216-7800
212-564-7854
The Journal of Investigative Dermatology
http://www.jidonline.org/
Official journal of the Society for Investigative Dermatology and the European Society for Dermatological Research. Publishes papers describing original research relevant to all aspects of cutaneous biology and skin disease.
Blackwell Publishing, Inc.
350 Main Street
Malden, MA 02148
888-661-5800
Fax: 781-388-8270
The Lancet
http://www.thelancet.com
An international general medical journal with links to other sites of biomedical interest, including journals and society sites, charity sites, and other online information resources.
Medical Journals on Yahoo
http://d2.dir.dcn.yahoo.com/health/medicine/journals/
Linked to numerous medical journals.
The New England Journal of Medicine
http://content.nejm.org
Weekly general medical journal that publishes new medical research findings, reviews articles, and provides editorial opinion on a wide variety of topics in biomedical science and clinical practice.
Postgraduate Medical Journal
http://pmj.bmjjournals.com/misc/about.shtml
Written for doctors in training to acquire the necessary skills to enable them to deliver the highest possible standards of patient care. Includes review articles about psoriasis.
Leicester General Hospital NHS Trust
Gwendolen Road
Leicester LE5 4PE, UK
Phone: +44 (0)116-273-0221
Fax: +44 (0)116-273-0820
Postgraduate Medicine online
http://www.postgradmed.com/index.htm
Peer-reviewed journal for primary care physicians. Features the latest in clinical research translated into practical information. Discusses psoriasis in “Patient Notes” and “Pearls in Dermatology.”
4530 W. 77th St.
Minneapolis, MN 55435
952-835-3222
Fax: 952-835-3460
PubMed Central (PMC)
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
Digital archive of life sciences journal literature; access is free and unrestricted; gives full-text articles.
Science News online
http://www.sciencenews.org
An award-winning weekly news magazine covering the most important research in all fields of science.
U.S. National Library of Medicine
http://www.nlm.nih.gov
Collects, organizes, and makes available biomedical science information to investigators, educators, and practitioners. See comprehensive listing above.
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Books for Patients
Coping with Psoriasis: A Patient's Guide to Treatment by David L. Cram, M.D., Addicus Books, 2000.
Covers how psoriasis starts, choosing the right doctor, treatment options, treating emotional symptoms, special diets, alternative therapies, and advances in treatment.
Coping with Psoriasis by Ronald Marks, Sheldon Press, 1994.
Self-help book tackles the practical questions that psoriasis sufferers are likely to ask.
Psoriasis: A Patient’s Guide by Nicholas Lowe, Taylor & Francis, Inc., 1998.
A single-volume source of information on psoriasis. Its compact, easy-to-read text provides a review of psoriasis and treatments available.
Psoriasis at Your Fingertips by Tim Mitchell and Rebecca Penzer, Class Publishing, 2000.
Practical information on the day-to-day management of psoriasis with easy-to-follow advice.
Psoriasis, Healing from the Inside Out by Heather J. Ferris, Melville Publications, June 1995.
Discusses issues of the body, mind, and spirit. It also provides practical techniques and opportunities to reflect on individual situations.
The Psoriasis Handbook: A Self-Help Guide by Muriel K. MacFarlane, United Research Publishers, 1999.
Discusses the causes and types of psoriasis as well as remedies.
Understanding Skin Problems: Acne, Eczema, Psoriasis and Related Conditions by Linda Papadopoulos, John Wiley & Sons, 2003.
Information to help you understand psoriasis. Written in easy-to-understand language, it offers a positive, hopeful outlook.
The 2002 Official Patient's SourceBook on Psoriasis, James N. Parker (Editor), Icon Health Publications, 2002.
A manual for anyone interested in self-directed research on psoriasis. Referenced with Internet listings and glossary.
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Books for Professionals
Handbook of Psoriasis by Charles Camisa, Blackwell Publishers, 1998.
Updated, distilled version of the classic 1994 text; a concise guide to the diagnosis and treatment of psoriasis.
Phototherapy Treatment Protocols: For Psoriasis and Other Phototherapy Responsive Dermatoses by Michael D. Zanolli, et al, CRC Press Publishers, 2000.
Step-by-step manual of protocols for ultraviolet light therapy in the dermatologist's office, including the new modality of narrow-band UVB.
Pocket Guide to Psoriasis by Thomas F. Poyner, Jonathan Barker, and Simon Davison, Blackwell Publishers, 2000.
Clinical overview of psoriasis and its primary care management, including diagnosis, management, and guidelines for treatment.
Psoriasis by Christopher E. Griffiths and Brian Kirby, Taylor & Francis, Inc., 1999.
Introduction to psoriasis for internists, medical students, and dermatology residents.
Recent Advances in Psoriasis: The Role of the Immune System by Barbara S. Baker, Imperial College Press, 2000.
Presents the theory that psoriasis is a disease of abnormal keratinocyte proliferation induced by T cells.
Textbook of Psoriasis by Petrus C. Van De Kerkhof, Blackwell Publishers, 1999.
For the trainee and practicing dermatologist, the book principally concentrates on clinical presentation of psoriasis, its diagnosis, and management using various pharmacological agents.
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Clinical Trials
ClinicalTrials.Com™
http://www.ClinicalTrials.com
Information for current clinical trials being conducted nationwide. Registry for enrolling in future trials.
ClinicalTrials.gov
http://www.ClinicalTrials.gov
Current information about clinical research studies.
CenterWatch Clinical Trials Listing Service
http://www.centerwatch.com
An international listing of more than 7,500 clinical trials in all therapeutic areas actively recruiting patients.
22 Thomson Place
36T1
Boston, MA 02210-1212
617-856-5900
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Patient Advocacy, Self-Help, and Support Groups
Center for Patient Advocacy
http://www.patientadvocacy.org
Nonprofit advocacy organization addresses access to health care, insurance matters, disputes over billing, finding support groups, and choosing a physician.
1350 Beverly Road, Suite 108
McLean, VA 22101
703-748-0400
800-846-7444 (toll-free)
Friends’ Health Connection
http://www.friendshealthconnection.org
Nonprofit support network that connects people with similar health problems for the purpose of mutual support. The Patient Network connects individuals. An additional site, Caregiver Network, connects family members, friends, and caregivers of people with health problems.
800-483-7436
HealingWell.com
http://www.healingwell.com
A resource for patients, caregivers, and families coping with diseases, disorders, and chronic illness. Offers health resources and interactive tools to enable patients to take control of their illness and start the healing process. Includes medical news, feature articles, doctor-produced video Webcasts, message boards and chat rooms, health e-greeting cards, newsletters, books, and reviews.
ItchPAC
http://www.pandorf.com/itchpac
Grassroots organization lobbying for rapid FDA approval of new psoriasis treatments. Includes information on current topics and how to join the organization.
c/o Rich Pandorf
908 Kiefer Trails
Ballwin, MO 63021
Making Connections
http://www.makingconnections.info
You'll hear about new psoriasis treatments from top dermatologists in your area. Ask questions live, on the spot-and get answers! Visit the Making Connections Web site for more information and to register for any of these free national patient education events. Attend in person, or visit the audio replay and event transcript on the Web site. This site is sponsored by Amgen and Wyeth.
Med Help International Patient Network
http://www.medhelp.org/network.htm
Patient support network which puts patients in touch with other patients for the purpose of sharing information and support.
6300 North Wickham Rd.
Suite 130, PMB #188
Melbourne, FL 32940
321-259-7505
MSN Groups: Psoriasis Support
http://groups.msn.com/PsoriasisSupport
Support group offering a message board, live chats, special events and conferences, resources and links, and general information.
The National Psoriasis Foundation
http://www.psoriasis.org
The world's largest nonprofit organization dedicated to educating, serving, and empowering people with psoriasis and psoriatic arthritis.
6600 SW 92nd Ave., Suite 300
Portland, OR 97223-7195
503-244-7404 or 800-723-9166 (toll-free)
Fax: 503-245-0626
WebMD Health Message Boards
http://boards.webmd.com/roundtable.asp
Read what other WebMD users are talking about, share your opinion, ask questions, and get advice from experts in their own boards.
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Legal Support
The Americans with Disabilities Act (ADA), enacted in 1990, protects qualified individuals with disabilities by prohibiting discrimination in employment, state and local government services, public accommodations, commercial facilities, and transportation.
Disabilities Rights Section
http://www.usdoj.gov/crt/ada/adahom1.htm
P.O. Box 65808
Washington, DC 20035-5808
800-514-0301
Americans with Disabilities Act (ADA) Hotline
800-466-4232
Offers personalized assistance and advice over the phone to individuals with disabilities, explaining their rights, evaluating their complaints, and, if appropriate, detailing how to file a complaint with various government agencies. Also provides an attorney referral service, as well as referrals to other agencies.
U.S. Equal Employment Opportunity Commission
http://www.eeoc.gov
Information about laws prohibiting job discrimination, including those pertaining to disability.
1801 L Street NW
Washington, DC 20507
800-669-4000
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